Cystic fibrosis dating other cf patients


30-Jan-2017 06:34

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EXCLUSION CRITERIA: Younger than 21 years of age; Older than 35 years of age.Cystic fibrosis is a serious inherited disease which mainly affects the lungs and pancreas but can involve other organs. This study will examine the experience of disclosing a cystic fibrosis (CF) diagnosis to a dating partner.People between 21 and 35 years of age with CF who have been in at least one dating relationship may be eligible for this study.Little research has been done on the process of disclosure in this population, and research specifically on disclosure to dating partners is lacking.This study seeks to gain insight into the experience of disclosing a CF diagnosis to a dating partner through semi-structured in-depth phone interviews with approximately 30 persons who have CF and who vary in gender, age, ethnicity, and severity of their condition.As medical treatment is improving more persons with CF are living into adulthood and are entering into serious dating relationships.

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Choosing to participate in a study is an important personal decision.

Over 9,000 people currently have cystic fibrosis in the UK.

Cystic fibrosis is an autosomal recessive disorder.

This means that in order to develop cystic fibrosis you need to inherit two cystic fibrosis genes, one from your mother and one from your father.

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If you inherit only one cystic fibrosis gene, you are called a carrier.

Talk with your doctor and family members or friends about deciding to join a study.